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Laughter is the Best Medicine
Today I am weary. It has been a very rough week. Bethany has had a bit of a behavior relapse along with big time insomnia, which means I don’t get to sleep either, and she has been majorly binge eating...
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By His Stripes We are Healed.
Isaiah 53: 5- “But He was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was upon Him, and by His wounds (stripes) we are healed” I Peter...
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Conversations with Bethany
Dad came home from work one night and asked Bethany what she had done that day. Her answer? ”A really big poop. Big like my big Jesus”! I added to the conversation by informing Dad that she had...
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Bethany’s Fun and Fabulous Night Out!
If you have been reading most of my posts you probably already know that we have been playing around with Bethany’s seizure medication dosages (by doctor’s orders) in an attempt to give her optimum...
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Discouraged, Yet Still Hopeful!
We are still tweaking Bethany’s medication levels. She’s now back up to 1800mgs. of Trileptal, 20mgs. of Onfi, and in a desperate attempt to get her to sleep more than 3 hours a night and stop eating...
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Boys Day In, Girls Day Out, and Jeremiah’s B-day party
Jeremiah was born on President’s Day eleven years ago! We celebrated his birthday this weekend with our oldest son and his wife who came up from NYC to party and play games with a couple of their...
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Thankful Thursday: Bethany’s on a Roll!
Since we began reducing Bethany’s Depakote level she has been eating a little less and beating us up a little less too! She’s much happier and as a result so are the rest of us! She is much more...
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Periods, and Pet Stores!!
This past Saturday Malcolm, the girls and I traveled thirty minutes to one of our nearest towns to check out the new pet store. Rebekah also wanted to get “The Boy” a birthday present. Jeremiah opted...
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Tips for Avoiding and De-escalating Meltdowns Part Two
To read part one of this series which is an account of my personal experiences with Bethany’s meltdowns please click here. Before I begin discussing avoiding and de-escalating meltdowns, I want to...
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I am a PushmePullyou
Many, many years ago I saw the original 1967 version of the Dr. Dolittle movie based on the series of books by Hugh Lofting. Just about the only things I can really remember about that movie are Rex...
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A Dangerous Medication Glitch and a Whirlwind Weekend
style="display:inline-block;width:320px;height:50px" data-ad-client="ca-pub-2148066053902622" data-ad-slot="7621354993"> We have had quite the hectic week end full of both good and bad occurrences....
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Bethany at Age 11- or Why We Homeschool Her
We had been homeschooling all our children since 1984 and we had every intention of homeschooling Bethany too, even after she became disabled by brain cancer in 2000. But when she was about seven I...
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Good Reads for Special Needs #1
A Collection of Good Reads for Special Needs and other things! // ]]> 1) I was appalled by the recent UK ruling that a mother be legally permitted to murder her twelve year old disabled daughter’s...
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Special Needs and Homeschooling Blog LinkUp: Basket Ball and Drinking Strike
Welcome to this week’s edition of the Special Needs and Homeschooling Blog LinkUp! I’m so glad you’re here! This is the place for families affected by special needs and/or homeschoolers to come...
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Help Bethany get Access to Medical Marijuana, Please!!
Our daughter Bethany has spent most of her life suffering. In fact, she has endured so much more suffering than any human being should ever have to endure. Bethany was diagnosed with a brain tumor in...
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Join the Fight for Access to Medical Marijuana
Yes, Yes Yes…I know I sound like a broken record, but I am asking you all once again to help Bethany and others suffering with debilitating diseases. Join the Fight For Access to medical marijuana!...
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NY Senate Passes Emergency Medical Marijuana
I am thrilled beyond thrilled that the NYS Senate passed the bills to expedite the use of emergency medical marijuana (50 to 12) for critically ill people, including children and epilepsy is on the...
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Special Needs and Homeschooling Blog LinkUp: Better Days Ahead?
Welcome to the Special Needs and Homeschooling Blog Linkup: The safe gathering place for those affected by special needs and/or homeschoolers to share, support, and encourage one another! This linkup...
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Bethany’s Blood Test and Other Good News!!
// ]]> I had been dreading taking Bethany to get her blood drawn. She can be so uncooperative, you know. But getting this blood test is an important part of hopefully figuring out what’s making her...
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Just What is Charlottes Web, Anyway?
It is beyond my comprehension and extremely frustrating to me that there are still so many people who are adamantly against legalizing marijuana, including hemp oils like Charlotte’s Web, for...
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